Bringing Up Down Syndrome helps families in the Valley - WAFF-TV: News, Weather and Sports for Huntsville, AL

Studies from the National Association of Down Syndrome show that 80 percent of children are born with the genetic disorder to women under the age of 35.

There are hundreds of resources for parents to take advantage of, but sometimes they can be hard to find. Bringing Up Down Syndrome, a non profit organization in North Alabama has helped dozens of family for more than a decade.

Kelly Jenks, president of the group said she didn't learn her son Adam had Down Syndrome until he was born.

"Most people are able to get the diagnosis prior to the birth and it was a little shocking because we weren't expecting it," said Jenks. "But we mainly were concerned because we didn't know what that meant."

Jenks said the organizations purpose is to offer information, services and support. She said when most parents learn their child has down syndrome, often times, they don't know where to start.

"Most parents are very eager to talk with us because, like Shane and I were, they're kind of in the dark, and when you talk to parents who are dealing with your situation already and have been through what you're about to go through, it's very helpful," said Jenks.

Every year, Bringing Up Down Syndrome sponsors a BUDDY walk in Huntsville. More than 500 people showed up to the event last year. The walk helps to raise funds for the services they provide to families across the valley.

This years walk will be at the Jaycees complex in Huntsville on October 6.

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